A few things I've learned

Hey Warriors,

Let’s talk about the big picture for a minute. Living with a Left Ventricular Assist Device (LVAD) isn’t just about keeping my heart beating today. It’s also about understanding why my heart got here in the first place and how we can all protect our hearts moving forward.

Heart failure doesn’t happen overnight. It’s usually the result of years of wear and tear, sometimes caused by genetics, sometimes by lifestyle, sometimes by things no one saw coming. But no matter how we got here, knowledge is power and prevention matters.

What Is Heart Failure, Really? Heart failure is when the heart can’t pump blood as well as it should. That means less oxygen and nutrients get where they need to go, and the body starts to struggle.

Symptoms can include:

• Shortness of breath, especially when lying down

• Swelling in the legs, feet, or abdomen

• Constant fatigue

• Rapid weight gain from fluid buildup

• A cough that doesn’t go away

Catching these signs early can make a world of difference.

When an LVAD Enters the Story For some of us, heart failure reaches a point where medicine alone isn’t enough. That’s where an LVAD comes in. It’s a mechanical heart pump that helps the left ventricle circulate blood throughout the body. Some people use it while they wait for a heart transplant. Others use it as their long-term solution. Either way, it’s a literal lifeline that can restore quality of life and buy precious time.

But here’s what’s just as important — we need to talk about prevention.

Steps to Protect Your Heart Before It Gets Here

• Know Your Numbers: Blood pressure, cholesterol, blood sugar. Keep them in check with regular doctor visits.

• Fuel Your Body Well: Aim for balanced meals with fruits, vegetables, lean proteins, and whole grains. Go easy on salt and processed foods.

• Move When You Can: Gentle, consistent movement matters more than perfection. Even walking 15–20 minutes a day makes a difference.

• Quit Smoking: If you smoke, get help to stop. Tobacco is one of the biggest risk factors for heart disease.

• Manage Stress: Your mental health matters as much as your physical health. Deep breathing, journaling, prayer, or talking with a therapist can help.

• Stay Informed: Learn your family history and share it with your doctor.

The Emotional Side of Prevention Talking about heart health can feel heavy. It can feel like another thing to put on your to-do list. But here’s the truth — it’s not about fear, it’s about freedom. Taking care of your heart means saying yes to more graduations, more kitchen dance parties, more sunsets.

Why This Matters to Me I didn’t just survive heart failure. I had to rebuild my life around it. My LVAD hums beside me as I write this , reminding me every single day that prevention saves lives. If you have the chance to make changes before you’re tethered to batteries, take it.

Heart health isn’t about perfection. It’s about being present. It’s about giving your body the best shot at carrying you through the moments you haven’t even dreamed of yet.

With Heart,

💙 Phoenix

"Taking care of your heart isn’t about fear — it’s about freedom."

Disclaimer:

I’m not a doctor — just someone who has spent years living with heart failure and gathering information along the way. What I share is based on my personal experience and some widely accepted facts. Please don’t skip your checkups or ignore symptoms. Talk to your medical team, ask questions, and advocate for yourself. Listen to your body, get the answers you need, and give yourself the best shot at living a long, healthy life. 💙